Syabil, our Haemophilia beneficiary, is currently 16 years old. He was diagnosed with severe Haemophilia A since birth. Due to some complications at the age of 4, it resulted in weakness on one side of the body and both of its legs. Hence, he is unable to sit upright or stand. Syabil is only able to move and talk minimally.
Syabil undergone 4 major operations and was in coma twice. Due to frequent vein rupture in brain, his right skull was removed. He also undergone a scoliosis surgery to correct his spine recently. He also suffered from excess brain fluids in his brain that leads to brain swelling. Syabil has to connect a tube to his stomach daily to drain the excess fluids.